Inicio
27 - 31 May 2009 Department of Diagnostic Radiology
P.O. Box 208042
333 Cedar St., Room 5039 LMP
New Haven, CT 06520 - USA
Contact: Kate Henderson & Dr. Robert White
Tel: 203-737-5395
Fax: 203-737-5394
http://www.hhtavm.org
50 North Medical Drive
HHT Clinic/1A71 SOM
Salt Lake City, UT 84132
Jamie McDonald, MS, LGC and James Carlisle, MD - Co-Directors
Main contact # : 801-581-8188 or tollfree 866-292- 4HHT (Sherlyn Marks- Administrative Coordinator)
Jamie McDonald - 801-585-9702
Dr. Carlisle- 801-581-8188
Fax: 801-581-2414
http://uuhsc.utah.edu/rad/hht.html
HHT Center of Excellence
OHSU L-605
3181 S.W. Sam Jackson Park Rd.
Portland, OR 97239-3011 - USA
Contact: Dr. Mark Chesnutt
Tel: 888-222-6478 ext 7660 or 503-494-7660
http://www.ohsu.edu/hht
660 South Euclid Avenue
St. Louis, MO 63110-1093 - USA
Contact: Dr. Murali Chakinala, Co-Director
Tel: 877-888-5864 or 314-454-8917
Dr. Andy White, Co-Director
Tel: 1-888-503-2237
Dr. Jay Piccirillo, Ear, Nose & Throat (ENT)
Tel: 314-362-8641
Fax: 314-454-5571
http://hht.im.wustl.edu
UCSD Medical Center
200 West Arbor Drive 8756
San Diego, CA 92103 - USA
Contact: Dr. Frank Miller (Asst. Julie Fisher)
Tel: 888-770-0296/619-471-0320
Contact: Dr. Thomas Kinney
Tel: 619-543-6607 (secretary: Angelica Robles)
www.uscd.edu/specialties/radiology/ir/HHT
www.ucsdir.org
Division of Medical Genetic, 538 Maloney
3400 Spruce Street
Philadelphia, PA 19104-4283 - USA
Contact: Dr. Reed Pyeritz
Clinic Coordinator: Georgia Griffen
Tel: 215-662-4740
Fax: 215-614-0298
www.med.upenn.edu/gdl//
Division of Pulmonary & Critical Care Medicine
200 First Street S.W.
Rochester, MN 55905 - USA
Contact: Dr. Karen Swanson & Dr. Michael J. Krowka
Tel: 507-266-0416
Fax: 507-266-4372
www.mayo.edu
Division of Pulmonary Medicine
1120 15th St. BBR 5513
Augusta, GA 30912-3135 - USA
http://www.mcg.edu/som/medicine/Pulmonary/PulmVasDis.htm
Contact: Jody Kenny for Dr. James Gossage
Tel: 706-721-6791
Fax: 706-721-3069
Email: jkenny@mail.mcg.edu
St. Michael s Hospital
6 Bond St., Room 6049
Toronto, ON M5B 1W8 - CANADA
www.hhttoronto.com
Pediatric HHT Clinic
Director: Dr. Felix Ratjen
Hospital for Sick Children
Tel: 416-813-5837 (contact: Susan Carpenter)
http://www.sickkids.ca/RespiratoryMedicine?section.asp?s=Clinical+Care&sID=3876&ss=HHT=Clinic&ssID=6188
Adult HHT & Pulmonary AVM Center
Contact: Rose Pantalone for Dr. Marie Faughnan, Director
Tel: 416-864-6060 ext. 2407
HHT Genetics Team
The Hospital for Sick Children
Division of Clinical & Metabollic Genetics
555 University Ave.
Toronto, ON M5G1X8
Canada
Contact: Ms. Regan Klatt, MS,CCGC,CGC
Vice-Director
Tel: 416-813-6389
Fax: 416-813-5345
Brain AVM Clinic
University Health Network
Dr. Karel terBrugge
Interventional Neuroradiologist
Tel: 416-603-5266
Email: karel.terbrugge@uhn.on.ca
http://www.brainavm.com
2E4.26 Walter Mackenzie Centre University of Alberta
8440 112 Street
Edmonton, AB T6G 2B7 - CANADA
Contact: Iris de Guzman for Dr. Vethanayagam
Tel: 780-407-1479
Email: irisd@ualberta.ca
CHUM, Hotel Dieu
840 rue St. Urbain
Montreal, QC H2W 1T8
Director: Dr. Marie Faughnan
Contact: Therese Carle
Tel: 514-890-8000 local 15672
Fax: 514-412-7123
Hammersmith Hospital
DuCane Road
London, ENGLAND W12 ONN
Contact: Georgina Rudd for Dr. Claire Shovlin
Tel: 44-208-383-3058
Email: c.shovllin@imperial.ac.uk
Contact: Dr. James Jackson (Secretary Pamela Brayshay)
Tel: 44-208-383-3485
You can also contact the Telangiectasia Self-Help Group (TSHG) at www.telangiectasia.co.uk
Contact: Diana Lawson
39 Sunny Croft Downley
High Wycombe, Bucks ENGLAND HP13 5UQ
Hull Royal Infirmary
Anlaby Rd
Hull, ENGLAND HU3 2JZ
Contact: Mrs. Hilary Finnis and Dr. Graham Robinson
Tel: 44(0) 1482-674608
hht@hey.nhs.uk
www.hey.nhs.uk/hht
You can also contact the Telangiectasia Self-Help Group (TSHG) at www.telangiectasia.co.uk
Mercy University Hospital
Grenville Place - Cork, IRELAND
Contact: Margaret Murphy & Dr. Adrian Brady
Tel: 353-21-2305040
Email: Margaret@hht.ie
Patient Support Group:
Grace Nolan Foundation at www.Gracenolan.com
St. Antonius Ziekenhuis
Koekoekslaan 1
3435 CM Nieuwegein, THE NETHERLANDS
Contact: Dr. Hans Jurgen Mager
Appointments: Mrs. Elly Vermorken
31-30-609-9111
www.renduoslerweber.nl
Univ. HNO-Klinik
Kirrberger Strasse
D-66421 Homburg - Saar, 49 GERMANY
Contact: Dr. Urban W. Geisthoff
Tel: 49-0-6841-162-2900
Fax: 49-0-6841-162-2997
Email: hnougei@uniklinik-saarland.de
Or
Urban.Geisthoff@uniklinik-saarland.de
You can also contact Morbus-Osler-Selbsthilfe e. V. (the HHT Self-Help Group for German speaking countries) at http://www.morbus-osler.de
Kliniken der Stadt Koeln / Hospitals of the City of Cologne
Krankenhaus Holweide / Holweide Hospital
HNO - Abteilung / Department of Otorhinolayngology
Neufelder Str. 32 - D-51067 Koeln GERMANY
Patient Support Group: Morbus-Osler-Selbsthilfe www.morbus-osler.de
Contact: Dr. Urban Geisthoff
Tel: 49-221-8907-12727
Fax: 49-221-8907-2730
Email: Geisthoffu@kliniken-koeln.de
Philipps-University Marburg
Department of Otorhinolaryngology
Deutschhausstrasse 3
D-35037 Marburg, GERMANY
Contact: Suzanne Zapf for Prof. Dr. Werner
Tel: 49-6421-2866808
Fax: 49-6421-2866367
Email: zapf@med.uni-marburg.de
Department of Otolaryngology
Head and Neck Surgery
Karl-Hansen Medical Center
Antoniusstr. 19
D-33175 Bad Lippspringe GERMANY
Contact: Dr. Benedikt J. Folz
Tel: 49-5252-954302
Fax: 49-5252-954350
Email: b.j.Folzmedizinisches-zentrum.de
Odense University Hospital
Dept. of Otorhinolaryngology
Sdr Boulevard 29
5000 Odense C, DENMARK
Contact: Dr. Anette Kjeldsen
Tel: 045-6320-2120 or 045-6320-2127
Patient Support Group: www.osler.dk
U.O di Gastroenterologia ed Endoscopia Digestiva
Ospedale Maggiori
Largo Dossena 2
Crema, 26103 ITALY
HHT Clinical Team
Contact: Dr. Elisabetta Buscarini
Tel: 0039-0373-280422/280726 (secretary)
Fax: 0039-0373-280654
ebuscarini@rim.it
HHT Genetics Team
Universita di Pavia
Genetica Medica
Via Forlanini 14
Pavia, 27100 ITALY
Contact: Professor Cesare Danesino
Tel: 0039-0382-507737
Fax: 0039-0382-525030
cidi@unipv.it
Patient Support Group:
Fondazione Italiana HHT, email: informazioni@hht.it. or website http://www.hht.it
University of Bari
Dipartimiento di Medicina Interna e Medicina Pubblica
Universita Policlinico
Piazza G. Cesare, Bari 70124 ITALY
Contact: Professor Carlo Sabba, M.D.
Tel/Fax: 39-080-5478708
informazioni@hht.it
www.hht-italia.com
Hospital Sierrallana (Servicio Cantabro de Salud)
Servicio de Medicina Interna
Barrio Ganzo s/n
39300 Torrelavega (Cantabria) SPAIN
Contact: Dr. Roberto Zarrabeitia
Email: rzarrabeitia@hsll.scsalud.es
Tel: 34-942-847400 (8053)
Fax: 34-942-847501
Dr. Pérez del Molino
Email: apdm@ono.com
Spanish HHT Patients Association web page is: www.asociacionhht.org or renduosler@asociacion-hht.org
Service de Genetique
Hotel Dieu
Quai Jules Courmont
69288 Lyon Cedex 02 FRANCE
Contact: Professor Henri Plauchu
Tel: 4-72-413295
Fax: 4-72-413146
Email: Henri.plauchu@chu-lyon.fr
Consultation Pluridisciplinaire Maladie de Rendu-Osler
Hopital Ambrose Pare
9, Avenue Charles de Gaulle
92104 Boulogne Billancourt Cedex FRANCE
Contact: Benedicte Chesneau
Tel: 33-014094432
Email: Benedicte.chesneau@apr.aphp.fr
Rikshospitalet University Hospital
Oslo, Norway
Contact: Dr. Ketil Heimdal, Consultant in Clinical Genetics
Tel: 47-2307-5593
Fax: 47-2307-5590
Email: Ketil.Heimdal@rikshospitalet.no
Akita University School of Health Services
Department of Physical Therapy
1-1-1 Hondo, Akita, 010-8543 JAPAN
Contact: Dr. Takanobu Shioiya
Tel: 81-18-834-111 Ext. 6531
Fax: 81-18-884-6500
Email: shioya@hos.akita-u.ac.jp
Department of Radiology
The Institute of Vascular Interventional Radiology
The First Affiliated Hospital of China Medical University
No. 155, Nanjing Bei Street - Shenyang, CHINA 110001
Contact: Dr. Hongshan Zhong & Dr. Ke Xu
Tel: 86-24-832-82447
Fax: 86-24-83282629
Email: zhonghongshan@hotmail.com or xuke@cmuimaging.com
Schneider Children's Medical Center of Israel
Rabin Medical Center, Tel Aviv University
14 Kaplan St. , Petach Tikwa
HHT clinic, Respiratory Division
Dr. Meir Mei-Zahav, Director
Tel: (972)-3-9253654
Fax: (972)-3-9253308
email: meir_zahav@clalit.org.il
Patient Support Group: Meira Heiman, President
Tel: 972-050-6-417187
Email: hht-issg@yahoo.com or Heiman@netvision.net.il
